Emalee has been feeling great!  She was able to go to Disney on her make a wish trip and had an amazing time!!!  Give Kids The World was such a wonderful place to stay and she loved all of the theme parks, rides and meeting the characters!  We are very grateful to Make A Wish for making it all possible for Emalee and our family…they are an amazing organization!
Since we have been home from our trip to Disney, Emalee has been back to Sloan Kettering for another round of rituxamab and chemo to help lower her HAMA levels.  So far they have not dropped enough to be able to go back onto the original 3F8 antibody trial she started yet, but they are hopeful that they will drop and she will get another dose of 3F8 soon!  Otherwise they will continue with another dose of the rituximab and chemo in a few more weeks! She is also back on her second round of accutane now too!  She has been taking it a lot better this time, but the side effects are about the same!  A lot of very dry, peeling skin on her face and some major mood swings and meltdowns, but at least she is not fighting taking it like before!!
We are now headed back to NYC tomorrow for Emalee to get all of her scans on Thurs. & Fri. of this week!  She will be having a CT, MRI, MIBG and Bone Marrow done and then we will be headed back home to celebrate Christmas with our family!  I am getting a little nervous about the results and wish they weren’t being done so close to Christmas, but I am praying there is no evidence of disease and everything goes well!  Please keep her in your prayers and I will update as soon as we hear the results!  Thanks so much!

 We would also like to wish everyone that has been following Emalee’s journey and keeping her in their prayers a Very Merry Christmas and a Happy and Healthy New Year!
Advertisement